I love life…says mum with locked-in syndrome…

Dawn Faizey Webster’s story appears in THE SUN newspaper… Locked in syndrome mum

Following on from the death of right to die campaigner Tony Nicklinson, whose death was reported this week, Featureworld interviewee Dawn appeared in The Sun newspaper.

Dawn was 26 weeks pregnant with her first baby when she suffered a catastrophic stroke. Baby Alexander was born by ceasarean but before she could hold him, she had lapsed into a coma. Over the next four weeks she drifted in and out of consciousness.

Dawn before her stroke

Doctors squeezed her hand, asking her to squeeze it if she could hear them. But although she could, horrifically she could not tell them. In fact, Dawn could not speak and was virtually paralysed. Today, she can only communicate by blinking her eyes and tiny sideways movements of her head.

Following her stroke, her marriage broke up and she could have sank into a depression. But despite having locked in syndrome – she has never held Alexander or been able to soothe him with her voice – she feels lucky to be alive.

Alexander is now aged nine and she finds enormous joy in watching him grow up. Dawn, who does not agree with the right to die, adores going to the cinema, theatre and on holiday with her family.

She communicates via a computer and although bar a huge medical miracle, she will never be cured, she is still grateful to be alive.

Dawn with Alexander

Featureworld covered Dawn’s story two years ago when it first appeared in the Daily Mail and then Bella magazine. And Dawn, who is currently studying for a degree in history, has since gone on to write a book, Slowly Making Ripples.

Read more about Dawn’s book here

Buy Dawn’s Book

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Alison Smith-Squire

Alison Smith-Squire is a writer, journalist and media agent selling exclusive real life stories to newspapers, magazines and TV. She owns the sell my story website Featureworld.co.uk, which was set up to help ordinary people sell their stories to the press.

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